Category Archives: Medicine

Coping With Dysgraphia

For Gregory

When I was a senior in high school I had a friend who would borrow one of the novels I carried everywhere with me and casually doodle the most amazing cartoons on the flyleaf. His cartoons were better than the things published in MAD or Cracked. My memory of that time may be a bit hazy now, but they were better to me then. Funnier. I marveled at the effortless way the pictures just came out of his hands, at his ability to draw, to write. It struck me as such a wonderful gift, to be able to take a pen and have it just make the lines you wanted to make and to make only those lines in the ways you saw them in your head.  Freehand artwork, freehand writing, is almost magic in my eyes.

They didn’t have a word for my disability when I was in school. I was never quite like the other children. Teased frequently, I hid in books and stared at my desk, afraid of catching anyone’s eye lest I be subjected to more derision. I didn’t know what made me different, but I knew that I was different all the same. The teasing I was subjected to originated with my second grade teacher who thought it would be a good idea to have the other kids torment me to make me write faster.

In my mind the first and second years of elementary school seem to blur together. It’s hard to separate one form of abuse from another. One of my teachers thought that teasing me was the ticket to getting me to perform. The other one thought that daily corporal punishment was it. Both were dissuaded from their delusions by my parents. The corporal punishment stopped, but the teasing continued until I moved away from that town. I wasn’t to be free of the hangups that this teacher’s cruel methods of instruction inflicted on me until well into adulthood. To this day I remain a public school skeptic largely because of my experiences in school at the hands of the children and this particular teacher, evidence of just how much damage one wrong idea can inflict.

My problems in school were bad enough that the school insisted my parents take me to see a specialist. We went to see the same diagnosticians in Denver two times; once in second grade and again in 5th grade. The school insisted that there was something wrong with me; it wasn’t the teacher, it wasn’t the other children. There was something wrong with me. So my parents paid for the doctors and paid for the travel, and off we went on what was a grand adventure from the perspective of my seven year old self.

I remember the experience because it was such a rare occurrence to be in another place. The Rocky Mountains around Denver were about as different from the grassy plains of Kansas as you can get. It was the first airplane flight I could remember, and it made me love flying. I have a great love of Colorado largely because of the experiences I went through in Denver on those two visits.

The doctors were nice. They gave me various tests. Handwriting tests, drawing tests. Clearly they were looking at motor control in the manner after the time (late 60’s early 70’s) trying to figure out why I couldn’t write well. Writing really hurt. It still hurts. The stupid pencils never went where I wanted them to go. Lines were never straight. Letters were never legible. Cursive? Cursive was a practice in slow torture. Every assignment in school made me suffer in silence; unable to write and yet required to write. Homework went undone. Not because I didn’t want to do it, but because I literally would grow tired from the constant pain of writing and simply pass out on my homework.

My mother doesn’t remember the word dysgraphia being used at the time, but what I was suffering through was distinctly dysgraphic in nature.

I loved to read. Reading and writing are two completely different exercises in the mind. The words would sometimes get tangled up in my head, but the places I could go while reading were so much better than the reality I was facing that I just soldiered on through the occasional confusion. But writing? I flunked a semester of english my sophomore year in high school because half of my grade would be based on a term paper I would be required to write long-hand. The subject of the paper that was selected for me was of no interest to me. I asked the instructor for a different subject more than once, only to be told I would write the paper and to stop arguing about it. In one of my first acts of rebellion I flunked the class rather than spend a week or more in agony only to have the paper rejected because it couldn’t be read.

I have never taken notes in class. When told to take notes I would write a few lines and stop (a trick I learned early. If the page is blank the teacher will notice and scold you) Notes were pointless. By the time I had written down the first sentence I’d have missed the next three sentences. What I learned to do was listen and absorb so that I could repeat what was said almost verbatim, at least briefly. Eventually I learned to synthesize the information internally and was able to rapidly apply it to new problems without ever having to write anything on paper.

I only recently learned that the ability to synthesize data internally is itself a special skill. Most people cannot remember things, cannot apply knowledge, without writing these things down.

Few of my teachers believed that I could do this, that I could absorb and apply knowledge without first committing it to paper. They especially didn’t believe it because I failed so frequently to do anything demonstrative in front of the class. I was afraid to write poorly and so would take far too long at the blackboard to be able to demonstrate anything to anybody.

Even though the specialists who tested me in fifth grade issued written instructions, specific to each teacher about the challenges I was facing learning in a classroom environment, the instructions were discarded as lending favoritism to a child that the school teachers and administration frankly thought was the problem in the first place. My mother was livid at the time and still gets angry talking about the subject. Did they know how much all of this testing cost? Paid for twice out of my parent’s own pockets? At the insistence of the school? Testing and findings to be discarded as too much trouble to institute, to much trouble to turn into a different teaching model?

What they did instead was slap a label on me. They called me slow.

I carried that label with me from second grade through seventh grade. The label and the torment only stopped at that point because I moved away from my hometown in Western Kansas for a few years; and when I came back to Kansas for my sophomore year of high school it was to a different town, Garden City, and to a different school. I never did spend any significant time in Leoti from that point forward. My nostalgia for the place I long considered home is leavened with ambivalence and rebellion. Rebellion against the label slow.

My sophomore and junior years of rebellion in Kansas and the custody of my father got me sent back to Texas and my mother. The all too familiar plight of children caught up in divorce. Shuttle diplomacy and holidays with the other parent. Custody battles and missed child support payments. From Leoti, Kansas and slow to Stinnett, Texas and rebellion. Garden City, Kansas and missed opportunities to Sweetwater, Texas and make the best of what you have left.

My senior year of high school in the late, hot Texas summer of 1980. My friend and his artwork were also transplants to the town and the school. Since we were both new, we decided to navigate the terrain together. Watch each other’s backs. The counselor lined out the required classes we would need to finish the year and graduate. He and I would be in organic chemistry together. A class we both found so boring that I would read and he would doodle on my books. We also had a few other classes together.

This is small town rural Texas, education isn’t something they spend a lot of money on. In the Kansas high school I had attended the previous year I had automotive mechanics and welding and a virtual smorgasbord of other classes I could have picked through if I had wanted to test my abilities in other areas. In small town Texas I essentially had two elective choices; metal shop and woodshop. Home economics would not be offered to boys. There was an FFA group, but animal husbandry was not my thing even if we had a farm to raise animals on (we didn’t) When we were unimpressed with the first two options, the counselor did admit that they also had a typing class and technical drafting. These were clearly choices she didn’t think anyone should be interested in. When we went around to talk to the various instructors to see what we might be interested in, I had an epiphany.

An epiphany in the example drawings from the drafting class. Drawings that illustrated how to build things. I had been a model builder for years by that point, but it had never occurred to me that someone had to draw those assembly instructions. It was the drafting equipment. The drafting machines, boards, lead holders, straight-edges and triangles. The realization dawned on me. I didn’t need fine motor control as long as I had an edge to guide the pencil. I could focus on pressure and distance and not worry about direction. Writing? Slow, painful, tedious work; but block lettering gave me the ability to finally be able to communicate what I wanted to say clearly. Leroy lettering guides kept the hands moving, forming the correct shapes.

My mother could not believe I wanted to draw when I came home from school that first day. After everything I had been through, the problems I had writing and communicating all my life. Writing, she told me, was something I always wanted to do. I wanted to tell stories. She would write things down that I asked her to, and then I would meticulously copy each character onto another page. But drawing? She couldn’t figure out what the attraction was. If that was what I wanted to do, she wouldn’t stop me from doing it.

An appreciation of Kenneth L. Zonge

It was another senior class that finally showed me how to write painlessly. Typing. I knew touch typing would be a useful skill because I had already seen my first computer keyboard.

My uncle, Kenneth Zonge, was a genius. No two ways about it, the guy is hands down the smartest man I’ve ever met by several orders of magnitude. Smarter than I am by about the same distance. He did early research into electronic mapping of rock strata, using computers to analyze the data and produce results that would tell miners where to dig for various minerals. His company Zonge Engineering and Research still does work in various fields in countries all over the globe. Back in the mid-seventies we went to visit him on a family trip, and he wanted to show off his portable computer.

Still looking for an image of
the “Red Baron”

The computer was built into a suburban; as in, it filled the entire inside of the vehicle aside from the driver and passenger seats. You had to open the side doors to get access to the input and output terminals, sitting outside the vehicle in the Arizona heat. As kids the science went right over our heads, but I do remember that he could type on a keyboard and the computer would print the clearest, most precise letters I had ever seen. It talked back to him. He played a text game for us and we were completely blown away by it.

Presented with the chance to learn how to touch-type as a senior, I took advantage of it. IBM Selectric III’s seem clunky and slow now, and error correction was a pain in the ass. But in the 80’s, for me, it was like being given access to electric light for the first time. I could type whatever I wanted on the keyboard and it would produce exactly what I wanted it to say almost as fast as I could think it. I had never had access to anything like it before. I asked to be able to do my homework in the typing lab, it was so much easier to just type it than it was to write it. I knew I’d never be able to afford a machine of my own, but if I could just be able to work in an office, there would be machines in the office I could use.

The pieces of my future were falling into place before me, whether I knew it or not. My intense interest in architecture could be accessed through drafting for architecture. My inability to write could be bypassed by access to a typewriter. After a year of drafting in high school, and a twelve month technical course at the local campus of TSTI, I took my label slow and my newfound tools and went out into the land of design and construction. Went out into the business world and was almost immediately flummoxed by the fact you have to sit still in an office. Sitting still drives me absolutely nuts. Give me some decent shoes and rugged clothes, and I’ll spend all day for weeks exploring every inch of ground around me for whatever can be found. I never really thought about it; but I imagine being cooped up inside revisited the torment of school, being asked to engage in rituals I found painful and to gauge facial expressions I found confusing at best, incomprehensible at worst.

Maybe I need the physical stimulation to make the mind work.

In any case, the first barrier to office work wasn’t actually the writing and drawing. No, the first barrier was getting over my own internal loathing of sitting still. That took years, longer than it took me to learn to type or to draw with precision. Eventually I learned to tap into what is commonly termed as flow now; and I could draw essentially effortlessly for hours at a time, longer and better than my peers. I had to be more dogged, more persistent. I had to be because I was slower than they were. That is an unpleasant, unavoidable fact.

My hand drawing production rate was much slower. However, because I had to take time to make sure the lines were exactly right, my drawings were also generally of better quality. This is not bragging, this is me relating the feedback that I got from dozens of years of work in the field. Yes, Anthony. Your drawings are beautiful. Can you turn them out faster? The same old label of slow coming back to haunt me.

“You are slow, Anthony.” Sounds like stupid in my ears, and it is meant to sound that way. Yes, I take longer to get there, but it will be worth the trip unlike some draftsmen I won’t mention. That is the line that ran in my head in response. I had to bite that retort back more times than I can count.

I learned to crib graphics as a method of timesaving. I would type or have someone else type notes and affix those transparencies to my drawings. I would draw details in such a way that I could duplicate them easily using a Xerox machine, or wholesale duplication of sheets of work. The whole industry of architecture was undergoing a change as I underwent these changes, but it was the echos  of “you’re slow, Anthony” in my own head that made it imperative that I cut every corner I could in order to turn drawings out as quickly as possible.

In the end, I did it.

Not because I got faster at hand drawing than anybody else. No, all of my peers can sketch rings around me. They always have been and probably always will be able to draw rings around me. The few times I’ve ever had to draw anything by hand in the field I was embarrassed to do so. My contractor friends, men who trusted my drawings implicitly, were always careful to assure me it would be fine; but I know just how childish my scribbles looked.

They were bad, and it was a barrier that kept me from advancing in the field of architecture. More than once I was offered promotion to supervisor or manager and I always balked at it. Why? Because supervisors and managers draw freehand right on the paper, and the draftsman just takes what they draw and cleans it up. I was really good at the clean up part of the process after years of practice. I was never going to be good at the freehand part. That was not something I would be able to do, and deep down in my heart I knew it was a barrier that I could not cross.

What changed things for me was the early exposure to computing at the shoulder of my beloved uncle. The exposure that made me understand the power of computers.

When you draw something in the computer, it can be duplicated endlessly without degrading the copy. The digital world allows you to be able to replicate whatever work you’d done previously by simply copying and pasting. Drawing guides are built in, so shaky handwork is irrelevant. The initial precision was the determining factor of replicability, and I had honed precision to a fine art already. It was just a matter of mastering the new tools.

Since I couldn’t get my employers to see the vision of my uncle’s suburban filled with computer gear, I took it upon myself to enroll in courses at Austin Community College so that I could gain access to contemporary PC’s of the time (386‘s probably) while the motor control problem makes me a klutz with hardware, software is just a matter of understanding the logic of the system in a way that allows you to utilize shortcuts built into it. Classes in programming were more than I wanted to deal with at the time, and programming itself means little to me still, but breaking security barriers on the simple GUI’s the school used at the time was child’s play, and I spent a year learning how not to get caught doing things with the computer that weren’t allowed, while learning the reasonably simple (for an experienced draftsman like myself) drawing exercises that I had to produce in order to pass the class.

When the classes were done and I felt prepared for what I saw as the inevitable future, my employers threw me a curveball and bought into a CAD program other than the one I had trained for. While I had spent a year learning AutoCAD, other CAD programs had made inroads in the architecture field and my employers purchased a program called CADvance and hired an operator from outside the firm to run the system.

Hoval calculator and measuring stylus

Side note. It’s nice to know I was actually behind the times when I started my evangelizing for CAD and computers in the architecture sphere. I found this article over at Reanimation Library on Boyd Auger’s 1972 book, The Architect and the Computer quite interesting.  Quite interesting that in 1972 the trend towards digitization was this apparent to anyone, even if they were really only promoting the products they had created to digitize documents.  I really do hate to think that something that I thought was apparent was invisible to everyone else. Clearly, not everyone.

Undaunted, I simply learned the far more straightforward command parameters for CADvance. The process took all of three days and I was already (unbeknownst to me) as fast or faster than the outside help my employers had hired. I mastered his system and improved on it before realizing I wasn’t going to be going anywhere in that firm and made the move to another firm. A larger firm that used both systems I already knew.

It was about the time that my new employers adopted a third system Microstation and I mastered that program (with the help of the Wife’s student software discounts, her then ongoing pursuit of an MLIS and her still invaluable proofreading skills. Love you too, dear) and then started helping my co-workers become proficient with this new third system that I began to realize that I wasn’t the slowest person on the floor. In the middle of a monologue of self-criticism about streamlining some process or other, the co-worker I was talking to stopped me cold to inform me that “you know you are the fastest draftsman on the floor, right?” No, I hadn’t known it until he pointed it out.

Liberation from false constraints, from labels you never wanted, never accepted is a feeling that is hard to describe. Hard to fathom. I will be eternally grateful to my friend and coworker who pointed this fact out to me. It was years of additional work understanding just what it meant to not be seen as slow and stupid. To not have to push back against a negative view, a constraint you internalized and never let go of until long after everyone around you had stopped holding the view and instead were puzzled by what continues to drive you to be faster.

A recurring argument that I had with a few of my supervisors and fellow architects (back when I had a license, back when I was one of them) was the common belief that people aren’t in nature when they aren’t working on a 2D paper surface. The misguided notion that the synthesis of ideas requires a fixed medium (paper) and a writing implement (pencil) to engage the creative brain.

Future architects are explicitly told by some college professors that they “cannot design in a computer environment.” This false limitation being taught to so many students appals me to my core. It invalidates everything about me, my experiences, my pain and trials and eventual triumph. Is it a good thing that I never went to college to learn architecture? Had I followed the traditional route, embarked on a master’s degree in Architecture, I might have had this additional bad information to wrestle with and put behind me. Computer design is wholly artificial and so it can’t be a place to design in.


If I accepted this falsehood as truth I would never have embarked on my journey in the first place. I’d be just as disabled and just as hopeless, but with no belief that I could ever be more than that. Paper and pencil are natural to the people who find them natural. If the characters will not flow from you hands using them, find some other medium to express yourself in. All of them are natural. Do what you can do and never apologize for having to take a different road than everybody else. None of them know what experiences you have, what disabilities you will have to cope with. What gifts you might have hiding inside.

This is the end of the story of Coping With Dysgraphia. It only gets me to the middle of my architecture story, a story I still haven’t told fully; beginning, middle or end. That story will have to wait for another muse, another time. My parting thought on the subject of dysgraphia is, I wish I could remember what the subject of that term paper was that I refused to write way back when. When I was a sophomore in Garden City in 1978 flunking out of english class. I could write a whole book on the subject now with the tools we have today. I wonder what kind of story that would have been then if I could have simply been able to do what I do now?

Listening to The Hero’s Journey TED radio hour inspired me to put this story into words. Specifically it was the story of Ismael Nazario who was convicted of a crime and sent to Rikers as a teen. There but for grace go I. The difference that the color of your skin can make. 

Sleep Apnea, Anxiety Dreams, Cpap Experience

Allergies have been kicking my ass for the last month. The Mother-in-Law has been declining in health for the last three months, requiring The Wife to be away for weeks at a time coordinating her care. This development has laid more burdens on my shoulders, more responsibility than I have had to maintain stress levels under than I have had to endure since going on disability.

The Son is a senior in high school, The Daughter has a job and neither of them drive yet. I have to train them to drive in one direction, getting them to their respective appointments on time in the process, and still be able to drive myself back home without triggering Meniere’s symptoms.

With all of this going on, health of relatives, my health, my children’s demands on my time, etc, I’ve still written more in the last few months than I have in years. You may well ask “why is that?” because I’m writing this article to tell you why that is, even though this is starting to feel like an infomercial from the inside, my writing of this piece.

I’m three months into my CPAP experience and I credit my clearly improved outlook to my much improved sleep patterns.

To start from the beginning; I don’t think I’ve ever slept right at any point in my life.  I have never gotten up in the morning on my own. It takes me hours to wake up (still does sometimes) to feel as if I am present in the world. Mornings have always been my enemy, and early arrivals have almost always been impossible to attain. The crime here is that I never thought to ask why this was.  Not one time.

I accepted the blame for attendance problems, all my life. You are lazy. You need discipline. You need to do this or that fad thing. More light at different times of the day. Take these sleep aids, take this wake up pill, drink coffee in the morning, etc, etc, etc. The list is never ending  and all of it has been wrong. All of it.

I used to get by on 4 hours of sleep a night, pretty routinely. Go to bed at 2am, wake up at 7am, go to work. Usually driving in the morning while not really feeling awake, having had to be shaken awake by The (ever faithful) Wife and pushed out the door with a cup of go juice after the mandatory wake up shower. I have always hated naps. I never feel like I wake up from a nap. The lethargy just continues until I succumb to sleep for several hours.

Weekends were sleep catch up times (something which has been demonstrated not to work) we would sleep well into the afternoon most Saturdays and Sundays, and still not feel well rested come Monday morning when the process started all over again.

Then the Meniere’s symptoms got worse, expanding from the Fall and Spring weeks of suffering to the months of suffering to almost every other day suffering. Rotational vertigo every week, sometimes more than once a week. I had to stop working. I had to figure out what went wrong. Why was this happening to me?

When I started paying attention to how I felt, when I started allowing myself to follow my own rhythms rather than the imposed rhythms of modern society; sleep when I was tired, eat when I was hungry, expend effort when I felt strong enough, I started noticing something about my sleep.

I slept way, way too long.  I’m not talking about 9 or 10 hours. Sixteen hours was common, sometimes as long as a full 24 hours. At first we chalked this up to the side effects of the anti-nausea drugs for vertigo symptoms.  I’ve always been easy to medicate. I’m a lightweight drinker, and generally another person’s half-dose of medication will have the desired effect on me. But the long sleep wasn’t limited to days when I had been taking medication. I also had very, very long periods of intense dreaming sleep. I’ve written about a few of these in the past.  Most of them were unintelligible upon waking, but I really enjoyed them while in them.

Finally this year I decided to start looking into my sleep patterns to see if there was something that could actually be done to get me to sleep something like normal hours. Normal in a modern sense, not a historical sense, which is different.

So I went to see a sleep specialist on the advice of one of my doctors. The sleep specialist said sleep apnea before I was even scheduled for a test. So after getting another doctor (second opinion time) to understand that I actually wanted to be tested first, we did the sleep study. Turns out that I stop breathing just under 30 times an hour while I am asleep. So a second study wearing the CPAP mask was scheduled.

I was very anxious about sleeping with a CPAP mask.  Sleeping with a mask on has always horrified me, in an Alien stuck to your face kind of way.  Don’t believe me?

May 19, 2016 2:52 pm 

Just woke up from another intense dream. Another architecture dream.  But the dream wasn’t architecture, the dream was a video game.  The particulars of the dream, the game, the architecture in the game, are not important.

What is important is the meaning of the dream, the game, the architecture. I awoke with a profound sense of loss.  A future fraught with anguish. Is this what my life is now?  Am I defined by my abilities to play a game? It’s been 8 years or so since I picked up World of Warcraft. On the one hand it has kept me attached to people, given me a reason to get out of bed even if I didn’t feel like doing anything besides stare at a screen. On the other hand it consumes a lot of time that I increasingly feel should be devoted elsewhere, if only I felt well enough often enough to do something else. 

If that is true, that I am defined by my abilities to play a game, then even by that limited measure I’m not doing too good.  I cannot see the game well enough to follow the various bits on the screen and know where to move in time to keep myself alive. As a raid healer, that is a serious problem. I not only have to stay alive, I have to keep others alive.  When they start telling you “your job is to stay alive” they are including you in their raid out of the kindness of their hearts and not much else. 

My health is deteriorating further.  The dreams are a signal.  They have become more intense and lengthy as my health has worsened.  I can fall asleep one day and wake up almost a full day later and not feel as if I have rested.  How is this even possible? The notion that someone who used to brag about being able to get by on 4 (and one half. Most important bit that last half) hours of sleep a night could sleep  9, 10, 12, 16, 28 hours and not feel rested is baffling. 

So I’m seeing sleep specialists now.  Sleep specialists who are hinting that my sleep has probably never been normal.  That I have a problem with sleeping that they can fix. Should I let them fix it?  The dreams are all I have anymore.  If they make the dreams go away, what will be left that is mine? 

So the anguished dream I just woke up from? 

I know I am real, but the characters in the dream, they are movie characters even though they stand in for caricatures of my bosses from the past.  Frank Gaffney is in charge of the firm.  Grace Ripley (blonde in a blue wig?) runs all the operations. The game is part of the business, the architecture of the story.  The game mirrors the events that occur in the ‘reality’ of the job, serving as an oracle for what happens next. Except that the dream, the reality, is coming to an end. The game is bugged and can’t be completed.  It has to be reset.  It resets reality. The characters reform in different roles and the game/reality starts over. 

Without my dreams, what am I?  If my dreams directed me to take up architecture, informed my designs and my goals, will fixing the sleep problem I’ve apparently had all my life destroy the creative side of my life?  Will I finally fully wake up and discover all of it was a dream?  The certificates and licenses? The rolls of drawings?  The wife and children? What is real? What is the dream? I don’t think I can tell anymore. 

I am stuck.  Stuck in a cycle that has to be ended. I have to figure out what is ailing me so that I can get back to some sense of normality.  I cannot continue to sleep for extended periods and marvel at the texture of the dreams. I guess it is time to really wake up.  Hope I see everyone on the other side of treatment.  Would hate to lose anyone to a reset.

Trussed up like a Christmas turkey

This was the dream before going in for the CPAP test. It is too grim, The Wife objected. So I decided to sit on it until after the test was completed.  Let my fears remain unvoiced for the time being. But I did vow to start this article at the time. I would record my thoughts about my CPAP experience during and after the diagnosis and treatment.

The weird part is, once I tried sleeping with the mask on, I knew I was hooked. Right away. The first test was torture. The wires woke me up. The sensors woke me up. I tossed and turned all night. The second test, the test with the mask on, was the best sleep I had had in years. Years.  Longer than I could even remember. Never even noticed the wires and sensors until the next morning. Breakfast was ecstasy. My mind bounced everywhere.

I quite literally could not wait to get a machine for the house so that I could try it out regularly in an environment that I felt was comfortable.  That process took a few weeks. Medicare pays, but it isn’t fast about doing it. Eventually I did get a machine for the house and that is when the actual work with the machine, the company that supplied the machine, started.

From the first night I realized that I needed to get something to hold my mouth closed at night. I would wake up with my mouth dry as a bone. The chin strap they sent me was of cheap manufacture, but The Wife is the granddaughter of a seamstress, so there was a remedy for that cheap chinstrap that fell apart problem.

Getting the supplies from the machine supplier is probably the most worrisome part of this process. They are completely unwilling to give you extra parts just in case you might need to swap out straps or masks or filters or anything.

Other than that process, dealing with insurers and medical aid suppliers, the experience with the machine has been pretty smooth sailing so far. I put on my flight mask at night and “ascend to 15,000 feet.” I am in my third month with the machine and although I still sleep as much as twelve or 13 hours on occasion (especially when the allergies trigger Meniere’s. Like today) I can get up in the morning when I need to, for the first time since early in my career as a draftsman. Get The Son to school on time with more regularity than we’ve probably done in his entire life.

I haven’t had time to play many games, what with all the other problems that have had to be dealt with this summer.  I think I only managed to go swimming one time, which is a record for me. I generally spend days at a time in the pool. Not this summer. There was definitely no time to start the new version of World of Warcraft, even if I had wanted to (luckily I didn’t) and I still haven’t finished the one game I wanted to play, Skyrim.

I have done some writing though, a lot more writing than I really felt I could pull off. I’m still working on some other articles that I have to publish before the election ends, but I have little fear I’ll get to those too, as well as pick up some articles I’ve left laying around for far too long.

Best of all, the dreams continue. I don’t know why I have these extended dream periods, but I am thankful for them. They are more hopeful these days, at least. Not fraught with horrors and endings like they had been for the last decade or so. Still pretty grim, but a better shade of grim. I’ll take that.

Convenience Clinics & Science vs. Big Gov’t & Religion

First up, CATO Daily Podcast Regulation Blocks Convenience Clinics which skims the issue of rent-seeking medical associations making it nearly impossible to create low-cost health outlets in some states due to restrictive regulations being put in place governing the practice of Nurses and Nurse Practitioners.

Then you have the CATO Daily Podcast Three Parents and an Embryo (based on an article in Scientific American) which addresses the pressing issue of Religious Right interference in today’s medical research; and also begs the question “what procedures will be effectively outlawed when the government controls health care?”

Which gets us back to the issue of professional associations doing a disservice to the public because it financially benefits their members. They’ve abused the system for so many years that now the chickens are coming home to roost. A majority of their own members (like the general public) just want out of the current system.

Out of the frying pan into the fire

But consigning our health care to the champions of good bedside manner, those lovely people who staff the local DMV office, carries other penalties as well. Take the sitting president’s delusions of conversations with his god, and then give that the force of health care policy. Birth control and family planning? No longer available within the US. Stem cell research? Dream on.

Every whim of whichever lackluster executive next sees the inside of the oval office will be virtually written into health care practice with a simple executive order. How good does a single payer system sound now?

No Good Deed Goes Unpunished

Sort of a follow on to The Road to Hell is Paved with Good Intentions. (and, apparently, I’m still trying to teach people to think) If, in fact, your actions amount to more than (feel) good intent, there’s bound to be some whiner out there who isn’t happy about it. Rest assured, they’ll do everything they can to make sure that you never try that again.

So, today I get a private message from the Austin_Browncoats moderator about my negative wit, as currently displayed on her list, and a reference to a total buffoon that picked a fight with me a year ago on the list because I dared to suggest that Firefly was dead.

It is dead. The show was cancelled. It might be revived, but it won’t be the same show. Star Trek never came back from it’s cancellation. Oh, they made movies, and they made spin off series, but the Original Series (TOS, for the Trekkers out there) remains as the same 79 episodes. It effectively died when NBC pulled the plug in 1969. For the fans it ‘lives on’, but considering what they’ve done to the Star Trek universe of late, it looks more undead than alive. Perhaps 14 episodes and a movie, coda (fade out) would be a kinder fate for Firefly than the fate that befell Star Trek.

Back to the buffoon. She ranted and raved for a few days, then packed up and left the list in a huff because “she had better things to do elsewhere”. Fine by me. Hadn’t heard anything of significance from her before the meltdown, didn’t see that it was much of a loss. I made my apologies to the list, and went on.

Only to have it thrown back in my face today. Well, that’s just fine and dandy. Yes, I tend to speak my mind, and I don’t generally give much thought to the impact this might have. I try to be concise and to the point, colorful yet clear, but I don’t really care if it ruffles feathers. It’s the way I talk (when I say anything at all) and it’s the way I write. Honesty is the best policy, and I follow that policy to the letter.

Like the latest dust up. Someone who probably should know better forwards that old Cough CPR post to the list. Now, most lists (including mine) have notices about forwarding this type of junk to the list. It generally amounts to “don’t”. Being aware that this is a bogus bit of netlore that could be potentially fatal, I immediately zipped off a rebuttal. Very shortly afterward, I get a response from the original author defending her post as being sent with “the best of intentions” along with some companion sympathy shoulder rubbing posts from another member.

So here’s another tempest in a teapot starting to boil. And who’s fault is it? Mine!

Yepper. How dare I speak in such a condescending fashion. Well, excuse me for trying to keep people from killing themselves with CPR tips that won’t work as advertised, and hurting someone else’s feelings in the process. I should remember the good intentions the post was sent with and not worry about those people who might actually kill themselves with the advice contained in the post.

However, the tempest never gets to a full boil. Why? Not because the moderator put a lid on it, deleting posts on the subject (Attn: Ms. moderator. Firefly fans should have more balls than to go whining to the authorities when the other kids in the sandbox don’t play nice. It just seems a bit counter to the whole “livin’ on the raggedy edge” kind of mindset) no, it never came to a boil because I resisted saying the wrong thing at the tempting moment.

The last post in the thread shows up, tearing at the hair and bewailing my lack of common decency for daring to take this poor woman to task for something she posted with the best of intentions…

…and I let it slide.

So, in the For What It’s Worth department I have this response:

No. Good intentions are not required as a prerequisite for doing good. Knowing the difference between the good and the bad is. Good intentions that yield bad results might as well be bad intentions. Common decency compelled me to set the record straight in the first place. Otherwise I’d have been more than happy to let the boat float along undisturbed, just like the rest of the sheep who can watch someone being mugged in an alleyway and do nothing about it.

You can feel good about the fact that my good deed has not gone unpunished.

An Atheist Marking the Untimely Passage of a Family Member

Ok, I give up. I don’t know if this is writer’s block or some internal need for catharsis, but I haven’t been able to make myself sit down and write anything of any significance since learning that my father-in-law had passed away four weeks ago.

Well, calling him my ‘father-in-law’ is simplifying things quite a bit, but that is what he was. Grandfather to my children, husband to my wife’s mother. True, the man that my wife called ‘father’ died several years ago, an event that changed all our lives quite a bit. But does that fact make the passing of this man less than her father’s passing?

This was a good man; a man of the earth, and a man of deep faith. A widower who was just as alone as the woman he met at church one Sunday. After a few years of friendship they decided to spend the rest of the time they had together; and they were happy together. My children enjoyed spending time with G-ma and Grampa Henry; would it be wrong to observe “more than when Grandma lived by herself?” Henry reminded me of my own long departed grandfather in many ways. He had a sharp wit, and a gentle disposition; someone who was sure of who and what he was in life.

Looking back, I wish “the rest of their time” had been more than it was. Four short years after we witnessed their marriage, Henry was gone from us, taken by a disease that none of us had heard of before. My son, now about the same age as his sister was when she had to say goodbye to her first grandpa, looked at me with the same questioning eyes; what does it mean, where did he go?

Questions I don’t have any answers for. Other people comfort themselves with stories of a beautiful afterlife that is much like this one; fanciful visions of angels and visiting loved ones who are long gone. Though I never spoke to Henry about his beliefs, as a practicing Catholic, I’m sure his views of the afterlife were similar. I hope that his beliefs were comforting to him; in the end, that is the purpose of religion.

The answer I offered my son was similar to the one I offered my daughter, “he’s in a better place”. Since both men were in constant pain (when un-medicated) before their deaths, it’s a fairly safe bet that the observation would be true. But what does it mean? I don’t want to delude my children, nor do I want to crush them with the weight of harsh reality. For me, the meaning of “better place” is somewhere between non-experience (the ending of this consciousness that is ‘me’) and surfing the cosmic flux, and I don’t really know which end it will favor when the time comes. Nor, after reading some of the weightier reflections on the subject, do I find that I really care. Having decided that spending time in fear of being sentenced to hell by a vengeful god was a waste, I instead actually try living my life; so that when it’s “Times Up” I don’t experience the “I should have’s”.

Which is perhaps the reason why I’ve been absent for the last month. Just making sure I’m spending my time wisely.

As an afterthought, the other thing that these two wonderful men had in common is they both trusted MDs at the local hospital to diagnose their maladies. And in both cases, the doctors failed them miserably. The wife’s father was killed by overdoses of radiation used to treat a non-existent tumor. Grandpa Henry was killed by the failure of these same doctors to properly diagnose a disease; a disease that ‘the wife’ correctly identified just using the symptoms and looking it up on the internet, a process that took less than an hour. Not that knowing what it was did any good. Cancer is like that when it is in it’s advanced stages.

The MDs could possibly have averted it if they had done their homework when they were first presented with the problem. I only wish that we had realized that he was going to the same doctors earlier than we had. Perhaps we would still have grandpa Henry with us. Probably not. Cancer is like that.

Downward Spiral Continues

Mentioned Steve Kubby the other day; I also blogged about the Downward Spiral that the system seems to be caught in.

Well, Steve isn’t getting any better, he’s getting worse. A quick scan of articles on the subject should make that quite obvious. The people responsible for holding him in prison are getting cold feet, made him sign a waiver of liability in case he should die in their prison. I imagine that they want us all to think that locking a man up and keeping him from taking what he believes will save his life, which will most likely cause his death, shouldn’t be held against the prison system. Like prison guards anywhere, they should understand that ‘just doing their jobs’ isn’t a good enough excuse.

Which brings me to Cory Maye. Cory Maye did what that friend of mine had a nightmare of doing. The nightmare continues for him. I don’t see why this man should sit on death row for something that any of us should not be afraid to do; shoot unidentified intruders who break into our houses in the middle of the night. It’s a point in the favor of the policemen involved that Cory Maye isn’t dead; most of the people who resist the police in these types of situations end up with several bullets in them.

If those backing ‘total law enforcement’ don’t like that Cory Maye can shoot a policeman and not be killed in return; I suggest that in the future, the police avoid being mistaken for petty criminals involved in smash and grab burglaries, not prosecute the average citizen for defending himself.

Steve Kubby and the “Insane War on Drugs”

Actually, when you understand who Steve Kubby is and what he’s gone through…
…then you pretty much have a picture of just how insane the War on Drugs really is.

The Administration is willing to kill this man simply to prove that they have the right to kill him by denying him his medicine.

Who voted for these nutjobs anyway?

Gonna crib some text from Knappster here:

Steve Kubby update on Brad Spangler’s blog

Update from Michele Kubby on Hammer of Truth

Let’s try to keep the focus where it belongs, folks: On saving Steve’s life.