All about Meniere’s Disease. Updated periodically.
When I’m questioned about why I’m retired already; or when someone airs doubts about my invisible disability, are you really disabled? the subject of Meniere’s disease is bound to surface. It is bound to surface because Meniere’s disease is the answer to both questions. If you just stumbled across this article on my blog and want to know, what is Meniere’s disease? I’ve never heard of it. I can understand that feeling. I’d never heard of it before its symptoms wrecked my life. Here’s a snippet on the subject of Meniere’s disease from my favorite resource of first resort.
I didn’t find anything that expressed the compulsion to listen to the album well enough to use as a quote. I didn’t find anything because I started with the title track and not the first song on the album, Cannonball. What I did find was a portion of the nearly seventeen minute video that the band released before the album as a promotion for their musical change of course.
Hodgson’s departure placed the burden of delivering new material squarely on Davies, but the absence of a full-time guitarist opened up new opportunities for the band when it came time to record the title track. Although Marty Walsh filled the guitar spot for much of the record, “Brother Where You Bound” featured some major-league pinch-hitting from David Gilmour and Thin Lizzy guitarist Scott Gorham.
A quote from 1984 begins the album track, a much better intro to the album and the song than the intro that is part of the above video. Here is the album track,
It starts the second side on the cassette tape that I first heard the album on. When I would plug it into the direct drive tape player in my car, I would get to Brother Where you Bound somewhere on the back side of Lake Sweetwater. The album was the perfect length to start at the beginning of an evening ramble because it ended about the time I would get to the highway that either lead me further away from home or back home in Sweetwater, back in 1984 when the album came out. It’s more of an EP than an LP since it only contains six songs. In my searching for the full video version of the song, I stumbled across this mashup of the audio from the song with video segments from Brazil that was was worth watching.
I never did find the full video as I remember seeing it on MTV back in the day. I was bitter about my breakup with my then fiancee who had cheated on me in my absence from Garden City, Kansas where I had attended the middle years of high school. She did me a favor. I should probably thank her, as I should thank Mom or Mr. Polk for allowing me the chance to get past the volcanic rage I felt towards him. She did me a favor because her infidelity lead me to take alternate paths in life, leading me ultimately to the Wife and kids that I still call family.
but this album resonated with me because the first three songs were solidly about getting through a breakup, while I was going through a breakup myself. Cannonball, Still in Love and No Inbetween all continue the theme of the pain of separation. (Like In the Air Tonight does with violent rage) Better Days, the last song on side one of the album/cassette is an intro to the song that takes up most of side two, the title track, Brother Where you Bound.
Rick Davies and his bandmates in Supertramp going through the loss of Roger Hodgson’s input impacted me and my life directly. It is weird how the music you embrace in any given time and place reflects the emotional turmoil of one’s own life. Or maybe that is completely predictable. In any case, the miskey by some of my family on asking them for feedback on Divorce clearly caused me to retreat to music that I was listening to the last time I was spending any real time with them. Or maybe I grieve for the breakup of my extended family in World of Warcraft. Probably the latter, but the music would not have come to me without family not understanding what it was I was driving at.
So it is in all relationships. The question that remains unanswered for me, in retrospect, is what the album that featured both Brother Where you Bound and Had a Dream might have sounded like. It would have been better than Famous Last Words, there is no doubt of that. Breakups are like that.
Had a dream it was war And they couldn’t tell me what it was for But it was something they could lie about Something we could die about, you know
Anytime, anyplace When you look that man in the face Well it is not a face you wanna see Sleeping with the enemy, you know
I’ve been to this dance quite a few times. I’ve never been an invited guest, always the chosen onlooker. When intimacies turn to hostilities, the invited guests always look to the involuntary participants to pick sides. As Bartleby said yesterday I prefer not to.
I’ve never been the invited guest because that was one of the ground rules I set for myself a long time ago, when I witnessed the first divorce. The divorce of my adopted father and my biological mother. This was the first time I was encouraged to pick sides as an involuntary participant, just a child of fourteen. I had nowhere else to go, so was forced to witness the folly of adults that should have known better than to let things fall apart as far as they did.
It’s easy. No really, it is easy, not the easy thingthat really is hard. Talk to your intimates. Don’t keep secrets unless they are secrets the other has already told you they want kept. Don’t betray agreed to standards of behavior without talking out the changes first. Don’t close off channels of discussion unless you are prepared to never speak to that person again except in the presence of a lawyer.
But it never fails. Someone thinks they can get by without communicating something. Then that something turns to a thing that can’t be spoken of. Turns into a barrier between two people. Turns into a weight around the neck of the relationship. Turns into a wall preventing communication. Then the secret is found out and the accusations of betrayal begin.
These are adults, but they sure don’t act like adults. Adults that understand even the uncomfortable subjects have to be discussed, and discussed endlessly. This is the nature of being humans, like it or not. Talk. Endless talk. Talk that makes you want to cut off your own tongue or gouge out your ears. If you stop talking, you will eventually cease to be intimate with the other in question. That is the point where they become other.
Other rather than same. The outgroup. The other.
Doesn’t matter. It wasn’t done against me, because I fucking talked it out first. I understand ownership and value and don’t take it for granted. I resent being asked to lend weight to one side or the other of a separation when I have no clear understanding of the fault that led to the separation. I will not willingly pick sides when both sides seem to be at fault and there is no clear reason for the separation in the first place aside from childish insistence on having your own way in a relationship.
The closest I have come to divorce is quitting a job, being fired from a job. There are employers that I can’t speak to again because of what transpired between myself and them. Always it was something kept from me that required that separation, not something I failed to tell them. I am what I present myself to be, take it or leave it, warts and all.
I remained Dad’s friend after the divorce despite his actions. Despite the facts of his behavior that I had to drag kicking and screaming out of the woman who expected me to follow her without reason. She was a little bit crazy like that, my mom. A conflict avoided was a win in her book. As if she could avoid the permanent void created in her children’s hearts by simply not talking about the cause of the divorce. It’s not that I had a choice in the matter, dad didn’t want us children, he just wanted things to remain the same in the daylight as they were in the dark. The philandering. The silence. I eventually forgave him, because, what else can you do with family? You will have to see them again. That is a given.
I won’t willingly speak with the employers that betrayed my trust. They earned my enmity by keeping essential facts from me. One day those betrayals may cost them dearly, if that day of judgement comes. Most of them are probably dead already, personally safe from further judgments against them. They are the lucky ones.
Lucky like the stepfather, the Polk in mom’s name, who publicly betrayed everything the word father means. Safe from judgment by being dead by some other hands than mine. Saving me the trouble of having his blood on my hands. I should have thanked him for that, but I never spoke to him after the betrayal of that day. The opportunity to strike or to speak never presented itself. Mercy, after a fashion. Probably a mercy crafted by mom’s hands. She never liked conflict, evaded it at every opportunity. Her unwillingness to engage probably being the the first miscommunication in a long series of misunderstandings. But she’s dead now too. Beyond the reach of judgement.
So here I am asked to take sides in another messy divorce. A smaller, less life-altering conflict than the ones I’ve been in before. If I never log on to World of Warcraft again, a game that like softball or bowling was to my father, the social connection that kept him active among his group of friends; if I never play the game again I won’t have to talk to any of the participants again. I’ll make new friends. I’ll find other games to play, other ways to connect to the outside world. The other games and other friends won’t have fifteen years of history for me to bank on. I’ll have to start over.
So I probably won’t quit World of Warcraft. I probably will log on and play the game. I like the game, even after all this time. Probably because of all this time, not because the game was so mindlessly enjoyable. It wasn’t. It presented challenges, but it offered social connections, connections that are simply not present in most other games. Social connection is why I am still playing the game, and now that very social connection threatens to destroy any remaining pleasure I find in it. I’m tempted to delete all my toons and start over fresh. A fresh start, like I’ve never played the game before. Maybe this week is the week to download and log on to World of Warcraft – Classic. Play a game that I’ve never played before, but sure does seem like what I’ve been playing for the last fifteen years.
At the very least, I will have to log onto the voice chat service and have those discussions that have to be had before either calling it quits or picking a side. I still would prefer not to, but the post-mortem must be performed if I am to have any closure for this latest divorce. I’m beginning to wonder if closure is overrated.
The family asked “why did you go there?” after I wrote this. My guildmates in a game I’ve played for almost as long as my children have been alive, 15 years now, wanted to know why I wouldn’t willingly just pick a side. This is the explanation for why I try not to pick sides. I’ve been used as a weapon before, by my father. I discovered his betrayals by confronting my mother after the fact. My insistence on knowing things has cost me dearly, many times. I’ll still ask those questions, every time. It is who I am. Take it or leave it. Warts and all.
On this week’s On the Media, how painful news might be making America numb. And, why sometimes it’s okay to tune out.
I prefer not to is the sum total of my inclinations for today. My Allianceraiding guild in World of Warcraft has broken up, and now I’m expected to choose sides in a fight I tried to convince people not to have in the first place. So now even my distractions are forcing decisions on me that I never wanted to make in the first place.
We must not confuse dissent with disloyalty. We must remember always that accusation is not proof and that conviction depends upon evidence and due process of law.We will not walk in fear, one of another. We will not be driven by fear into an age of unreason, if we dig deep in our history and our doctrine, and remember that we are not descended from fearful men
Dan Carlin’s Hardcore History contains a portion of this quote in the intro to each episode. I recognized it as being an Edward R. Murrow quote the first time I heard it. It was also featured in a scene in the movie about him titled Good Night, and Good Luck, Murrow’s signature tagline for his broadcasts.
Edward R. Murrow stared down the last demagogue that held high office. He did it at great cost to himself and his fellow journalists. Where are those people brave enough to stand up to the demagogue currently seated in the chair of the President of the United States? Are we too amused by the circuses to bother with it?
This instrument can teach; it can illuminate; yes, and even it can inspire. But it can do so only to the extent that humans are determined to use it to those ends. Otherwise it’s nothing but wires and lights in a box.
…and this is why I’m not the guy you want canvassing. Or maybe I am. I wouldn’t put up with treatment like this. Call the cops, the guy is a raving lunatic and he’s going to get someone killed. Hopefully he’ll only get himself killed, but even then he should be restrained and medicated until we find out what is wrong with him and everyone like him.
This is what we are going to have to do if we want to silence these arrogant assholes. Make them understand, as a group, that we will put them in a rubber room and pipe in elevator music all day long if they don’t cool their shit. Just go all Ministry of Truth on their asses.
A willingness to love your country by looking at it clearly.
What The Constitution Means To Me, nominated for two Tony Awards, and a finalist for the Pulitzer Prize, the show is inspired by her time as a fifteen-year-old high school student competing in American Legion speech and debate contests, where she spoke about the meaning of our founding document.
When I listened to last weeks show I contemplated recording myself reading some of I am a Patriot and sending it to Preet, but as usual my absolute terror of speaking in front of a group (even time-delayed speaking) drowned the idea and hid it’s body in the woods until the submission time had passed. There were still a respectable number of submissions, and the editor of the podcast (who doesn’t appear to be named anywhere) blended them together in a nice tribute that probably took several hours to get right. This episode is well worth the time it takes to listen. Maybe I’ll be able to catch Heidi Scheck’s show when it goes on the road.
The National Forensics League is a nationwide organization that gives high school students the opportunity to polish their speaking/acting skills, compete in regulated National tournaments, and be a part of a lifelong organization that promotes solid speaking skills and intelligence. Bruno E. Jacob began to contemplate the foundation of the NFL when asked if there was an honor society for high school debaters. Realizing such a thing did not exist, Jacob drafted a proposal and in 1925 the NFL was born. It is now the oldest and largest honor society for speech and debate high school students. The NFL continues to exude excellence by promoting achievement in debate, speech, and academics. For instance, the NFL awards around $153, 000 in college scholarships every year to help members who otherwise might not be able to afford college.
The alternate domination of one faction over another, sharpened by the spirit of revenge, natural to party dissension, which in different ages and countries has perpetrated the most horrid enormities, is itself a frightful despotism. But this leads at length to a more formal and permanent despotism. The disorders and miseries, which result, gradually incline the minds of men to seek security and repose in the absolute power of an individual; and sooner or later the chief of some prevailing faction, more able or more fortunate than his competitors, turns this disposition to the purposes of his own elevation, on the ruins of Public Liberty.
Without looking forward to an extremity of this kind, (which nevertheless ought not to be entirely out of sight,) the common and continual mischiefs of the spirit of party are sufficient to make it the interest and duty of a wise people to discourage and restrain it.
It serves always to distract the Public Councils, and enfeeble the Public Administration. It agitates the Community with ill-founded jealousies and false alarms; kindles the animosity of one part against another, foments occasionally riot and insurrection. It opens the door to foreign influence and corruption, which find a facilitated access to the government itself through the channels of party passions. Thus the policy and the will of one country are subjected to the policy and will of another.
He might as well have named Donald J. Trump, the description fits so well. A hat/tip to Justin Amish and the Washington Post for publishing his opinion piece today. It motivated me to go look up Washington’s farewell address just to verify that was the language in the document.
Today, I am declaring my independence and leaving the Republican Party. No matter your circumstance, I’m asking you to join me in rejecting the partisan loyalties and rhetoric that divide and dehumanize us. I’m asking you to believe that we can do better than this two-party system — and to work toward it. If we continue to take America for granted, we will lose it.
I’m writing you to inform you of my knowledge concerning your dereliction of duty, and what I see as your one chance to save yourselves from the coming storm that is rising against Donald Trump and the Republican party that he has remade in his image. To save yourselves from the fate that awaits both him and his accomplices in the high crimes and misdemeanors that he will soon be accused of. Including his accomplice in the Senate, Mitch McConnell.
In 2010, Mitch McConnell informed Republican contributors that he intended to not do his job for the next two years in order to make Barack Obama a one term president. When President Obama was reelected in 2012, Mitch McConnell proceeded to not do his job, and to encourage his fellow Senators to not do their jobs, including both of you, for the next four years as well. As a result of his and your efforts to derail the US government under Barack Obama, the migrant crisis on the Southern border was never adequately addressed. Because of his and your negligence, the opioid epidemic was never addressed at all. Because of his and your negligence, the student debt crisis has continued to spiral into a catastrophe. Because of his and your negligence, thousands and millions of Americans, thousands of Texans, have suffered and died without adequate healthcare. Continue to suffer and die to this very day. Not satisfied to see them suffer and die at the current rates, your caucus in the Senate has attempted to throw more people off of the ACA at the behest of your corporate and wealthy funders. Because of his and your negligence, the impacts of climate change have never been acknowledged and no attempts to offset CO2 emissions have even been begun at the federal level.
I could continue this litany of negligence, disrespect and outright lies on his and your parts, but I will be here all day writing this if I was to attempt to enumerate every single thing McConnell’s willingness to be derelict in his duties, his encouragement to you to be derelict in your official duties to serve and protect the constitution of the United States, and through that document the people you represent. I don’t consider you to be worth that kind of outlay of my time. No, both of you are beneath my notice. I wrote you both off years ago because of things you said and did both before and after you entered office. I know both of you are wholly owned by corporate donors and wealthy benefactors. I know that neither of you care about the suffering of average Texans, not in the slightest. I know that neither of you care about anything but being re-elected and being able to continue to take sweet campaign contributions from dark money sources. Therein lies both of your problems. I will spell this dilemma out for you.
You will lose your next elections. Both of you. It’s true, I won’t and never have voted for either of you. So there is no need to try to prove to me that you aren’t the things I describe above. I know that I will get no return correspondence that will address any of the points that I make in this letter. You will dismiss this letter, as you have all the other letters I have sent you, as being from someone who does not represent the majority of Texans. Your current problem is larger than me, larger than Austin where I live, a place on the map that won’t vote for you either.
A city you Republicans have sought to punish for our unwillingness to support your previous pro-corporate agendas, along with most of the metropolitan areas across the state of Texas. We will not swear allegiance to you and your corporate owners, we see ourselves as citizens of the city we live in, not the state of Texas that our cities are unable to escape the control of. Your governor and the Republican controlled Texas legislature have all shown how much disdain they hold city dwellers in by forcing us to abandon rules that we deemed necessary for city life. Forcing us to abide by the whims of your corporate masters. We do not forget your disregard for our desire to go our own way, make our own rules. But your problem only starts in the cities that will not vote for you.
Nor will we support your leadership’s current white supremacist agenda. The targeting of racial and religious minorities. The demands that the US establish a legal preference for the christian religion and its god. This is contrary to the constitution of the United States and all of the founding documents that have come down to us through the ages. It is there in black and white for anyone to discover. The racism that lies at the center of the Confederacy that your schools lie to our children about. The Jim Crow laws that your white supremacist forebears forced the federal government to accept in violation of the spirit of the fourteenth amendment. All of it, there for anyone to stumble across if they simply have the curiosity to go look.
Your problem is that all of Texas can see that you serve Mitch McConnell and Republican corporate funders. You do not serve the state of Texas, the state you were sent to Washington DC to represent. This can be seen in your willingness to watch Texans suffer and die without healthcare, as I mentioned previously. No, you don’t serve Texas; you serve Mitch McConnell, a man who violated his oath of office most recently in 2015 by not at least holding a vote for or against Merrick Garland, an act that was required by law, by the very constitution you swore to uphold. Mitch McConnell who is personally profiting from his wife’s job in the cabinet, also in violation of the constitution. You serve this man, and this man is not worthy of being a member of the Senate.
Mitch McConnell serves Donald Trump. Not the office of the president, an office that has sat essentially vacant since Barack Obama left office three years ago. No, he serves the man Donald Trump, a man who has never obeyed the law, a man who lied when he took his oath of office and even now openly conspires with our enemies in an attempt to retain political power. He serves Donald Trump, a man who is doing his dead level best to start a war with Iran that isn’t necessary. Donald Trump, the man that is starving and killing climate refugees on our Southern border in an attempt to prove that we in the US are even more heartless than the MS-13 gang members that he scares his voting block with. Donald Trump, and through him Mitch McConnell, wants to be more cruel than the gang members that are killing these people in the places they escaped from.
Now, all of this might not be a problem for you if only you could control the press like dictators do in places that Donald Trump loves. Places like Russia and North Korea. But this isn’t one of those poor, information starved places. This is the United States, where anyone can get on the internet almost anywhere and find out what the truth is by simply looking for it. By reading a newspaper or going to a library or just turning on their TV sets. And they are finding out about the things that I describe above. They know of your negligence. They know of your dereliction of duty. They, the majority of Texans who can and will vote, will not be voting for you in 2020 or 2024 because they will have a choice other than you to vote for. You may not be worried about this. You may think you have a fix in that will make sure you appear to win your elections anyway. The people who know what I know? Those people will not be fooled by your chicanery.
You have one chance and one chance only now to save your hides and your good standing, if not your offices. Begin hearings today to have Mitch McConnell removed from the Senate. Join with the leadership of the House of Representatives in their attempts to find out just how much criminality that Donald Trump has conducted under the guise of being president of the United States. Call for impeachment hearings for Donald Trump, a man who was never worthy of the office of the President in the first place based on his own rhetoric and his own lawless business practices. Do these things and we will not be forced to convict you along with your leadership when we finally take power from you again. The choice is yours. The writing is on the wall for anyone to see now. Choose.
Support groups for the disabled are frequently a lifesaver for people who have limited access to humans with sympathy/empathy for what they are going through. I participate in several online support groups for Meniere’s, the invisible disability that I am cursed with. The image above/right was posted in one of the private groups I’m part of; and when I went looking for the image I discovered it was all over the web in various forms, many of them heartlessly defaced by trolls who think that all the disabled people should get out and get a job, you lazy bums!
In the Meniere’s group where the image was posted one of the commenters asked why the third guy from the right is leaning on an upside down dildo. He made me laugh with his question, and we riffed on that back and forth for awhile. But the question got me thinking, which is why I went online looking for the origin of the image and stumbled across all the troll variations of it and the casual cruelty of the unafflicted that comes with that territory.
International symbology is one of those things that, having once been an architect, I have an inside track on understanding. Here’s what the symbology means, officially:
Blind (universal symbol for services for the blind)
Crutches (injured get preferential access. Hospital signage)
Most of the symbols in the invisible disability image are not standard, but crafted in the helvetica style adopted by international symbology. There is no ISO symbol for missing limbs because that disability is too specific to a particular person not a generalizable disability requiring recognizable symbols that give directions. Well, maybe at the Veterans Administration where they have amputees waiting for years to get care. They probably have queue signage and queues that go on for blocks.
However, the illustrator that created the invisible disability image left off one of the most common disability symbols, the symbol for services for the deaf. It doesn’t fit the theme, but deafness is a pretty common disability and just leaving them out of the image sells their disability short. This is something I’m sensitive to since I’ll probably be deaf one day myself.
While looking for the origins of the illustration, I stumbled across the dildo dude, who can be seen in this Shutterstock image, as well as a couple of the other symbols. I also discovered a movement afoot to update the accessibility symbol with something that looks like it was designed this century, instead of last century, Accessibleicon.org. I can’t say I’m promoting their defacement of standard signage because I have an uncontrollable twitch when it comes to graffiti, an urge to reach out and snap off the arm of the person defacing public property. But I do like the updated symbology. I was never very fond of the old symbol in the first place.