How to describe what happened yesterday? I couldn’t describe it while it was happening to me, so I have little hope of describing what happened now that it is over and I feel normal. At least, as much as any chronic illness sufferer can be said to feel anything approximating normal on any average day. To the extent that normal equates to average, then today is a normal day.
It wasn’t pain. It wasn’t numbness. I just didn’t feel right. I wasn’t hungry, even though I should have been. I wasn’t tired, even though I should have been. I just felt… off. I couldn’t even put my finger on exactly what was off.
The Wife needed me to help her with errands that needed doing, so I shelved my weird non-feeling that I couldn’t describe and went out and sat at the Social Security office to file paperwork while she went out and did the other things on the todo list for yesterday. Then we came straight back to the house were I forced several glasses of water down my throat and then went back to bed and slept for another six hours.
When I woke up it became clear that the Irritable Bowel Syndrome might have been the cause of the entire day’s problems. I’ll spare you, dear reader, on the gory details that lead me to this conclusion. Needless to say, I felt much better after visiting the toilet when I woke up. I’ll need to remember to force fluids the next time I feel off in some weird way that I can’t explain. I do have a bad tendency to eat when I’m thirsty rather than pick up something to drink, a habit that can make constipation worse rather than better.
Evidence of this? This sixty-five thousand dollar mass spectrometer is being used to determine the safety of street-level drugs.
Instead of increasing the spending on the drugwar, adding to the millions upon billions of dollars that we currently spend combating the black market in illegal street drugs, how about we just decriminalize drug use and then regulate drug manufacture.
…and we do all of that knowing that some people will still get high, keeping an eye out for abusers so they can get treatment not prison. How about we do that instead? Rather than deploying space age technology to determine what potentially deadly drug was cut with what other potentially deadly additive in some back alley lab somewhere? End the black markets. Stop playing either the part of the Baptist or the Bootlegger for a change.
The Planned Parenthood clinic in San Angelo, Texas has closed.
Planned Parenthood was the only place in the region that a woman could go to get birth control pills at a reduced cost. To get mammograms and pap smears done. The only place that poor women could go to see to their basic health needs. I know this because The Wife and I relied on that clinic when we lived in San Angelo. Now that clinic is closed and those women who are still in San Angelo have nowhere else to go.
The promise that Conservative Christianists made, that women’s health would not suffer in Texas because of their war on Planned Parenthood, was an outright lie. They don’t care about women’s health, they only care about maintaining male control over the female’s reproductive system. That is the beginning, the middle and the end of the story when it comes to why they hate Planned Parenthood.
It is the same reason why the founder of Planned Parenthood was reviled when she started this movement to care for women’s health first and foremost. She was liberating women from their reliance on men, and men don’t like that. It would be nice if this liars were better at telling the lies they tell. At least you could be comfortable in the lies that way.
On Tuesday I started feeling the effects of an oncoming attack, but I was determined to raid with my group in World of Warcraft as scheduled. We managed to do our average best, although we didn’t clear the entire heroic level of Azshara’s palace the first night. On Wednesday I felt worse. The start of a two-day migraine set in, a knot of pain right in the center of my skull. I did manage to show up and raid again that day, but I wasn’t my best and it showed. Thursday the pain was so bad that I sat in the library with no lights on for the entire day, wishing the pain would go away. Even the monitor for the laptop set to the lowest light setting was bright enough to cause stabbing pain, so I just sat there listening to podcasts wishing I could do something else.
On Friday night the vertigo started. It was pretty mild, compared to vertigo attacks of the past. No projectile vomiting. No lying on the bathroom floor. The room would start spinning, and then I would re-orient myself by staring at a point on the wall for ten minutes or so. When I went to bed the vertigo was so bad and persistent that I couldn’t sleep, and I couldn’t focus on a point in the dark. So I took a valium and finally fell asleep. On Saturday the vertigo could not be dispelled any longer. No amount of re-orientation would make it stop, and I was beginning to get nauseous. Time for the Xanax, which I stayed on for the entire day and through most of Sunday morning.
I woke up about an hour ago. I feel dizzy now. Dizzy, not vertiginous. The lights are still too bright but they don’t hurt like they did Wednesday. I’ve got to go visit my ENT on Tuesday to get a refill on my Betahistine anyway, so at least I’ll have some symptomatic stuff to talk with her about while I’m there. I’m going to try the vestibular exercises that my physical therapist gave me as soon as I publish this. I tried them on Friday when the vertigo started and they just made things worse. Fingers crossed.
I’m in a sleep study tonight. I’m fighting with the mask because it’s making the fart noise. CPAP users will know what I’m talking about. I remembered that I’ve been doing this a lot lately. Fighting with the mask causes me to roll over. Back and forth. I think to myself it’s all in how you hold your mouth.
That explains everything. Everything that doesn’t want to work in life even though it should. It’s all in how you hold your mouth. Miskeys. Plotting errors. Gaming errors. Automobile maintenance. Using any kind of mechanical device.
It’s all in how you hold your mouth.
Man I could use a drink right now I think. My mouth is as dry as a bone. My tongue feels like sandpaper on the roof of my dry mouth. I can’t have a drink though, because my CPAP mask is on.
Oh right. Nasal mask. The nurse asked me if I wanted to change masks before I started this night of sleep testing. Maybe I should try a nasal mask. Then how I hold my mouth may not be that much of a problem anymore. At least, when it comes to sleeping with my CPAP mask on it won’t be. When I’m button-mashing while playing a video game, it’s still going to be important. I have chin straps for making sure the mouth is closed when I’m wearing the mask. I don’t need to have the mouth covered with the mask.
That’s it. That’s the choice. A broken system that leaves millions behind while costs keep going up and insurance companies keep sucking billions of dollars in profits out of the system — or, for about the same amount of money, a new system that drives down overall health costs and, on average, relieves the typical middle class families of $12,400 in insurance premiums and other related health care costs.
The Missouri state health director, Dr. Randall Williams, testified at a state hearing Tuesday that he kept a spreadsheet to track the menstrual periods of women who visited Planned Parenthood, an action that one lawmaker has called on the governor to investigate.
The spreadsheet, which was made at Williams’ request by the state’s main inspector, helped to identify patients who had undergone failed abortions.
It gives me no pleasure to say I told you so. Not even the ambivalence of schadenfreude. but I did tell you this would happen.
…I am slightly amused, though, reflecting on the denial of anti-abortionists who insisted that no behavior of that kind would be required to save all the lives of the unborn. It’s too bad they don’t understand how the law works, or they might have been smart enough to realize they didn’t want to go where their beliefs were taking them.
What we know from research is that one out of five of you, 20 percent, will change your opinion on what to do. And by doing that, you will not only have made your life a whole lot easier, and probably even better, but the whole health care sector will have benefited from your decision.
I was slowly strangling. I was underwater. A place that can be heaven for me, so long as I can get back to air when I want to. But I couldn’t get back to air. There was a puzzle in front of me. I had to solve that puzzle to get back to the surface and breath. How did I get here? Why couldn’t I breathe?
Oh, something was holding my mouth closed, and my sinuses were blocked. How odd. Why not open your mouth to breath? Underwater? A voice in the back of my head says “you are not underwater, moron. Breathe!” So I open my mouth and breathe, and then I wake up.
The stupid CPAP machine is off again. I don’t know if I forgot to turn it on, or if I turned it off in my sleep, or if the machine is simply failing. What I do know is that this is the second time in a few weeks that I’ve had my sleep disturbed by it being off while I have the mask and chin strap on, and the dream that prompts me to wake up is that underwater puzzle dream. I can almost picture it and the game it is part of, but the image escapes me now. It was so vivid in the dream.
Almost a nightmare. I can’t go back to sleep even though I’ve only been in bed for a few hours. So I get up and pad around. Eat a little cereal, take an antihistamine and an expectorant, try to relax. After a few hours I padded back to bed and again tried to sleep. This time I woke convinced the power was off. I feel back asleep with my hand over the exhaust port on the CPAP mask, reassured that the machine was working by the air washing over my fingers.
…even more reassuring is the knowledge that I will be going in for a recheck of my sleep issues in the coming weeks. Then at least I’ll know whether it is mechanical failure, deteriorating health, or active imagination that is causing the CPAP to stop working sometimes. Fingers crossed in the meantime.
I missed raiding again tonight. Thunderstorms started rolling through Austin at about 5:30 pm and persisted until about 7:00 pm. After the first flicker of the house power during a storm we tend to turn all the electronics off. We turn them off and wait until the storm has passed. This is how we’ve approached dealing with power surges in Austin Energy’s lines ever since we lost electronics a number of years ago to a lightning strike that hit a transformer in the neighborhood.
But it wasn’t just the fact that I would have had to reboot the computer and do updates in a few short minutes that kept me from raiding tonight. I’ve been uncoordinated all day. Dropping things, knocking things off the counter that I knew were there and thought I would miss. Just a general sense of dizziness and disorientation that had me wondering if I would make it to raid tonight or not. When the thunder started rolling and the lights started flickering, I not only knew I would probably miss raiding tonight, but I knew that the reason I was feeling so unstable was the atmospheric pressure had changed with the storm front moving through, and that was probably why I was feeling so dizzy. This happens pretty reliably. I’ve tried tracking the barometric pressure in the past, but it doesn’t seem to be highs or lows that are the trigger, but the simple fact that the pressure changes rapidly.
When I went to do the new vestibular exercises that my physical therapist has me trying out, I could not do one of them properly, and this is the first time I’ve had this problem since starting the exercises. I can’t find any Youtube videos that replicate the exercise that was was given to me, the specific exercise that I’m having trouble with today. However, this video illustrates the basic mechanics.
I use my thumbs, and I close my eyes after centering on the target. Then I’m supposed to move my eyes to where I think the other thumb is and then open them again. If I’ve missed the second target I’m supposed to focus on the correct position, recenter, and then close my eyes again before moving my eyes back to where the first target was, repeating as many times as I think necessary.
I could not find the second target today. Dozens of repetitions and the target is never where I think it should be. Never happened before. I started doing this exercise a few weeks ago, and when my physical therapist showed me this exercise I was thinking I don’t need to do this, I know where my thumbs are. Using peripheral vision, I’ve managed to track back and forth between the two targets without a hitch every time I’ve tried the exercise. Then today, I open my eyes and I’m not looking where I thought I was.
I have the explanation for why I’ve been such a clutz all day now. It just doesn’t make me feel better knowing what the problem is. I’m going to have to do a better job of doing the exercises as often as needed and not just when I think I’m having a problem. At least the dizziness didn’t progress into a full-blown vertigo attack today.