I noticed it as I headed for bed this morning. Turning over in bed caused the world to spin, requiring me to focus in order to calm the spin. It wasn’t bad, but it was persistent.
It was also present when I woke up. As I moved about today, the spinning has gotten more persistent, tending towards nausea. So it is time for the Xanax again. The knee and the back are still painful from my bathtub flight last year, so I’m going to sit here and play World of Warcraft in my pained and vertiginous state. Because I’m going to do something today other than drool on myself. I’m hoping I’m not coming down with whatever sickness the Son brought home from college with him.
Every year, more than 2,500 left-handed people are killed around the world from using equipment that is meant for right-handed people. The right-handed power saw is the most deadly item.
Statistically, one person in 4,400,000 is killed every year from using equipment which is meant for right-handed people, and this accounts for more than 2,500 deaths of left-handed people every year. In terms of numbers, 10.3% of left-handed people (both males and females) suffer an injury while driving a vehicle, and 31.6% of left-handed people (both males and females) get injured in sports.
I was prescribed fish oil in the last year of the last millennium. Fish oil was supposed to treat my triglyceride levels that had topped 300 at the time. This was back in the days when there was just fish oil, and you took a lot of it. There was little understanding of what was desired in the supplement, but the doctors back then were pretty sure that you should be taking fish oil on a daily basis to lower bad blood cholesterol. I was prescribed nine 1400 milligram softgels, to be taken every single day. That meant that everything tasted like fish oil for several years. Everything tasted like fish oil until they started enteric coating the softgels. I got pretty creative with how I took them, so as to limit the flavor and gas that the fish oil imparted to everything. There was no mention of what kind of fish oil in that original script. Omega 3 might have been a known thing at that point, but it wasn’t on my radar.
As we scrolled past 2000 and headed for the middle of the next decade, researchers started to get a better understanding of what kind of fish oil was desired. That was when Omega 3 fish oil became a thing. Omega 3 was what they were finding made the difference. When I learned this fact I did the math and figured out that I could cut my dosage to two or three softgels if I bought the right kind of fish oil, a reduction that was grudgingly okayed by my GP of the time.
But then the next set of research results came back, and it looked like the researchers were backpedaling on the benefits of fish oil in avoiding heart attacks. I tried to get the doctors to let me stop taking the stuff because I hated having to work around the taste of the oil in the back of my throat all the time. At every visit, the general practitioner and then the cardiologist kept insisting that I had to keep taking the nauseating stuff. I humored them and kept taking it, but I stopped worrying about how much and how often.
I stopped worrying until the last of my current keg ‘o fish oil from the warehouse shopping club started to run low, and I went looking for a replacement bottle. It was when I checked the Omega 3 content of the brand I had been taking against the new bottle’s Omega 3 content that I realized that I had been slacking off the one thing that might have been keeping my cholesterol at bay. That my recent adventures with angioplasty might have been partly of my responsibility. The brand I had been taking had about a third of the Omega 3 of the brand that I had just purchased. Which meant I should have been taking 9 of the damn things just like I had been doing at the beginning. So the bottle that I had been dipping out of for over a year probably should have only lasted about 3 months, and there is no telling for how long I haven’t been meeting the minimum dosage of Omega 3 that the cardiologist expects me to take.
How much is that? you might well ask. I had no idea, so I asked the cardiologist today and they said EPA over 660 DHA over 60, twice a day. I had to look on the bottle label to find out what EPA and DHA were references for, and only then realized that EPA and DHA are two different kinds of Omega 3.
1400 mg of fish oil is a completely misleading measurement, and a straight reading of Omega 3 isn’t enough to know whether what I’m taking is the right stuff or not. Nope, now I need to be taking those two specific variants of Omega 3 (EPA and DHA) and those are the minimum numbers, twice a day.
If I die from a heart attack, it will be obscure nomenclature that kills me. You can put that on my tombstone.
How to describe what happened yesterday? I couldn’t describe it while it was happening to me, so I have little hope of describing what happened now that it is over and I feel normal. At least, as much as any chronic illness sufferer can be said to feel anything approximating normal on any average day. To the extent that normal equates to average, then today is a normal day.
It wasn’t pain. It wasn’t numbness. I just didn’t feel right. I wasn’t hungry, even though I should have been. I wasn’t tired, even though I should have been. I just felt… off. I couldn’t even put my finger on exactly what was off.
The Wife needed me to help her with errands that needed doing, so I shelved my weird non-feeling that I couldn’t describe and went out and sat at the Social Security office to file paperwork while she went out and did the other things on the todo list for yesterday. Then we came straight back to the house were I forced several glasses of water down my throat and then went back to bed and slept for another six hours.
When I woke up it became clear that the Irritable Bowel Syndrome might have been the cause of the entire day’s problems. I’ll spare you, dear reader, on the gory details that lead me to this conclusion. Needless to say, I felt much better after visiting the toilet when I woke up. I’ll need to remember to force fluids the next time I feel off in some weird way that I can’t explain. I do have a bad tendency to eat when I’m thirsty rather than pick up something to drink, a habit that can make constipation worse rather than better.
On Tuesday I started feeling the effects of an oncoming attack, but I was determined to raid with my group in World of Warcraft as scheduled. We managed to do our average best, although we didn’t clear the entire heroic level of Azshara’s palace the first night. On Wednesday I felt worse. The start of a two-day migraine set in, a knot of pain right in the center of my skull. I did manage to show up and raid again that day, but I wasn’t my best and it showed. Thursday the pain was so bad that I sat in the library with no lights on for the entire day, wishing the pain would go away. Even the monitor for the laptop set to the lowest light setting was bright enough to cause stabbing pain, so I just sat there listening to podcasts wishing I could do something else.
On Friday night the vertigo started. It was pretty mild, compared to vertigo attacks of the past. No projectile vomiting. No lying on the bathroom floor. The room would start spinning, and then I would re-orient myself by staring at a point on the wall for ten minutes or so. When I went to bed the vertigo was so bad and persistent that I couldn’t sleep, and I couldn’t focus on a point in the dark. So I took a valium and finally fell asleep. On Saturday the vertigo could not be dispelled any longer. No amount of re-orientation would make it stop, and I was beginning to get nauseous. Time for the Xanax, which I stayed on for the entire day and through most of Sunday morning.
I woke up about an hour ago. I feel dizzy now. Dizzy, not vertiginous. The lights are still too bright but they don’t hurt like they did Wednesday. I’ve got to go visit my ENT on Tuesday to get a refill on my Betahistine anyway, so at least I’ll have some symptomatic stuff to talk with her about while I’m there. I’m going to try the vestibular exercises that my physical therapist gave me as soon as I publish this. I tried them on Friday when the vertigo started and they just made things worse. Fingers crossed.
I’m in a sleep study tonight. I’m fighting with the mask because it’s making the fart noise. CPAP users will know what I’m talking about. I remembered that I’ve been doing this a lot lately. Fighting with the mask causes me to roll over. Back and forth. I think to myself it’s all in how you hold your mouth.
That explains everything. Everything that doesn’t want to work in life even though it should. It’s all in how you hold your mouth. Miskeys. Plotting errors. Gaming errors. Automobile maintenance. Using any kind of mechanical device.
It’s all in how you hold your mouth.
Man I could use a drink right now I think. My mouth is as dry as a bone. My tongue feels like sandpaper on the roof of my dry mouth. I can’t have a drink though, because my CPAP mask is on.
Oh right. Nasal mask. The nurse asked me if I wanted to change masks before I started this night of sleep testing. Maybe I should try a nasal mask. Then how I hold my mouth may not be that much of a problem anymore. At least, when it comes to sleeping with my CPAP mask on it won’t be. When I’m button-mashing while playing a video game, it’s still going to be important. I have chin straps for making sure the mouth is closed when I’m wearing the mask. I don’t need to have the mouth covered with the mask.
I was slowly strangling. I was underwater. A place that can be heaven for me, so long as I can get back to air when I want to. But I couldn’t get back to air. There was a puzzle in front of me. I had to solve that puzzle to get back to the surface and breath. How did I get here? Why couldn’t I breathe?
Oh, something was holding my mouth closed, and my sinuses were blocked. How odd. Why not open your mouth to breath? Underwater? A voice in the back of my head says “you are not underwater, moron. Breathe!” So I open my mouth and breathe, and then I wake up.
The stupid CPAP machine is off again. I don’t know if I forgot to turn it on, or if I turned it off in my sleep, or if the machine is simply failing. What I do know is that this is the second time in a few weeks that I’ve had my sleep disturbed by it being off while I have the mask and chin strap on, and the dream that prompts me to wake up is that underwater puzzle dream. I can almost picture it and the game it is part of, but the image escapes me now. It was so vivid in the dream.
Almost a nightmare. I can’t go back to sleep even though I’ve only been in bed for a few hours. So I get up and pad around. Eat a little cereal, take an antihistamine and an expectorant, try to relax. After a few hours I padded back to bed and again tried to sleep. This time I woke convinced the power was off. I feel back asleep with my hand over the exhaust port on the CPAP mask, reassured that the machine was working by the air washing over my fingers.
…even more reassuring is the knowledge that I will be going in for a recheck of my sleep issues in the coming weeks. Then at least I’ll know whether it is mechanical failure, deteriorating health, or active imagination that is causing the CPAP to stop working sometimes. Fingers crossed in the meantime.
I missed raiding again tonight. Thunderstorms started rolling through Austin at about 5:30 pm and persisted until about 7:00 pm. After the first flicker of the house power during a storm we tend to turn all the electronics off. We turn them off and wait until the storm has passed. This is how we’ve approached dealing with power surges in Austin Energy’s lines ever since we lost electronics a number of years ago to a lightning strike that hit a transformer in the neighborhood.
But it wasn’t just the fact that I would have had to reboot the computer and do updates in a few short minutes that kept me from raiding tonight. I’ve been uncoordinated all day. Dropping things, knocking things off the counter that I knew were there and thought I would miss. Just a general sense of dizziness and disorientation that had me wondering if I would make it to raid tonight or not. When the thunder started rolling and the lights started flickering, I not only knew I would probably miss raiding tonight, but I knew that the reason I was feeling so unstable was the atmospheric pressure had changed with the storm front moving through, and that was probably why I was feeling so dizzy. This happens pretty reliably. I’ve tried tracking the barometric pressure in the past, but it doesn’t seem to be highs or lows that are the trigger, but the simple fact that the pressure changes rapidly.
When I went to do the new vestibular exercises that my physical therapist has me trying out, I could not do one of them properly, and this is the first time I’ve had this problem since starting the exercises. I can’t find any Youtube videos that replicate the exercise that was was given to me, the specific exercise that I’m having trouble with today. However, this video illustrates the basic mechanics.
I use my thumbs, and I close my eyes after centering on the target. Then I’m supposed to move my eyes to where I think the other thumb is and then open them again. If I’ve missed the second target I’m supposed to focus on the correct position, recenter, and then close my eyes again before moving my eyes back to where the first target was, repeating as many times as I think necessary.
I could not find the second target today. Dozens of repetitions and the target is never where I think it should be. Never happened before. I started doing this exercise a few weeks ago, and when my physical therapist showed me this exercise I was thinking I don’t need to do this, I know where my thumbs are. Using peripheral vision, I’ve managed to track back and forth between the two targets without a hitch every time I’ve tried the exercise. Then today, I open my eyes and I’m not looking where I thought I was.
I have the explanation for why I’ve been such a clutz all day now. It just doesn’t make me feel better knowing what the problem is. I’m going to have to do a better job of doing the exercises as often as needed and not just when I think I’m having a problem. At least the dizziness didn’t progress into a full-blown vertigo attack today.
I haven’t been tracking my vertigo spells on the blog. I don’t know why. I think I didn’t want to make everyone reading this suffer through repetitive bouts of vertigo with me by my documenting the episodes on the blog directly, each time that I went through one.
I wasn’t really able to type or even make noises beyond gagging on vomit between requests for someone to kill me in the years of suffering that I endured before being prescribed Xanax and Promethazine, which work quite well to subdue the worst parts of rotational vertigo.
…and after the attacks were over, sometimes two days later, I would be unable to do much more than sit up in bed and eat soup for at least a day. So I would have had to remember to go document the event while still recovering from the trauma of the event. Anyone who has had an intense illness can testify just how much they don’t want to go back and revisit just how hellish the event was later. “…and then I blew chunks all over the bathroom floor. Luckily I didn’t fall back into it when I passed out.” All the pain of a drunken bender without the entertainment of being stupid drunk first. Leave it in the past.
Now that I have a medication regimen down, I just have to deal with the fuzzy-headedness the drugs inflict on me. I’m stuck for hours, essentially staring at a fixed point in space so as to anchor the eyes on something. Oops they’re drifting left again. Find the Catbus plushy. No more drift? Okay, back to writing. Lather. Rinse. Repeat. For as long as is necessary. For as long as it takes to get tired and fall asleep.
This year has been really bad. The worst since I stopped working and could eliminate stress by not having to perform on a set schedule every week. The increase in symptoms started February a year ago and has slowly gotten worse. I’m pretty sure it’s the second ear failing on me, having gone bilateral then. If that’s the true cause of my current suffering, then I should level back out after a few miserable years, and hit a different long-lasting trough of capabilities. I’ll just have to take stock again then, see what I can still do.
In the meantime I’m going to start trying to document each time I get full vertigo. Since I can do it while sitting here trying not to spin, access to the laptop being a qualifier, I’m going to do my best to write something while the vertigo is kicking my ass. I’m going to do this because this blog is for me as well as for you, dear reader. It might be handy to be able to go back and check how bad the bad really was.
This time the vertigo popped right in the middle of the heroic Azshara raid boss fight my current raiding group has been working on for the better part of two weeks. It looked like we might have a good chance of getting her down this week, but I kept getting dizzier and dizzier and missing prompts to go here and there as the mechanics of the fight require.
Just too much screen movement for a day that the eyes want to pretend that the world is spinning around my head. I had to bow out and leave them to their work. Hopefully they did better not burdened by my inability to deal with so much motion on the screen. It’s taken two hours to get the spinning down to the point where I can sit in my adjustable bed and type this simple entry up.
I don’t know how many actual spells I’ve had this year, which is why I’m going to start trying to do this each time I have one. I know it’s the first one in October because it’s still the first week of October, or was until yesterday. But I had at least two in September, ditto in August and it was even worse in July. June wasn’t too bad but that was when the light dizziness really seemed to kick in, May leading into June, and I can’t figure out what is causing this constant near-nausea inducing dislocation and disorientation on a daily basis. It is maddening.
I’m getting blood tests done for allergies this time, betahistine will interfere with the skin tests and I’m not willing to stay off it for a week. I’ve also started some training in vestibular therapy while I’m in physical therapy for lower back pain. I’ll write more on that subject when I know more about it. I just want the dizzy to GO AWAY. But it won’t. So I’ll medicate it away when I have to.
October 9th – Still recovering from the vertigo last night. I’m going to miss two raids this week. Can’t be helped. I’m almost in a vegetative state today.